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Bill would pave way for electronic exchange of patient data

Milwaukee, Wis. - Legislation to accommodate the electronic exchange of patient data between different health facilities and systems soon will be introduced in the Wisconsin Legislature, according to Kevin Hayden, secretary of the Wisconsin Department of Health and Family Services.

Hayden, speaking to the annual membership meeting of the Wisconsin Health Information Exchange, said backers have drafted legislation and hope to get it passed in the forthcoming but brief session of the Legislature, which is expected to conclude by the end of March.

Hayden, who spoke to the group by phone Tuesday due to the possibility of inclement weather, said the bill has been reviewed by Gov. Jim Doyle and has his full support.

The legislation would address key barriers to patient data exchange contained in two statutes, one dealing with the rights of the mentally ill and another pertaining to the release of health information.

Kevin Hayden
“I'm happy to report that after 16 months of work with the eHealth Board… we now are on cusp of introducing legislation to deal with two key barriers to patient data exchange,” Hayden said.

Grounds for disclosure

The bill is the result of work with key stakeholder groups, including mental health advocates and private-sector partners to reduce restrictions on the electronic sharing of certain health information without written consent of patients, and to modernize privacy laws governing confidentiality in a way that is aligned with federal policies. In particular, the state mental health statute, 51.30, has resulted in delays to the implementation of the Madison area patient data exchange.

Hayden also said the bill would eliminate the requirement to document all disclosures except for those covered under the Health Insurance Portability and Accountability Act (HIPAA), such as cases involving child or elder abuse case.

“It is critical for health information exchange to be successful, that you have to move information between disparate health systems,” Hayden said. “A Milwaukee-based health system should be able to send information to an emergency room in Minocqua without the patient's consent. This begins to lay the foundation for health information exchange between competing systems.”

Faulty phraseology

According to DHFS, language in existing state statutes makes the exchange of healthcare information of mentally ill patients difficult because of the requirement for patients to provide informed written consent, which is not always easy to obtain.

Current Wisconsin statutes 51.30, which pertains to mental health, developmental disability, and AODA treatment records, creates barriers to health information exchange. This is because, except under limited circumstances, the patient’s written consent is required to disclose information to another healthcare provider.

Under current law, only certain elements of a patient's treatment records may be released without informed written consent. These elements include name, date of service, diagnosis, and medications.

In addition, these details may only be released to healthcare providers in a “related health care entity," which generally means a clinically integrated care setting or a given health insurance plan.

Current law would not allow a physician from Dean Clinic in Madison to share a patient’s health information with a University of Wisconsin physician without the written informed consent of the patient.

The requirement under statute 51.30 is more stringent than state laws governing other types of healthcare information, which permit disclosure of healthcare information for treatment purposes without patient consent, and they are more stringent than federal HIPAA privacy law guidelines.

The bill, AB 793, proposes to amend statute 51.30 to allow the exchange of “crucial” information that physicians have identified a need for, and it would allow for the exchange of information with any healthcare provider with a need to know.

It would do so by adding diagnostic test results and symptoms to the list of elements that may be exchanged without patient written consent and by removing a requirement that data only be exchanged within a “related healthcare entity.”

Written consent still would be needed to disclose information on an entire consultation note or discharge summary and other elements not contained in the bill.

Amending statute 146

The barriers that need to be removed under Statute 146 include a prohibition of re-disclosure of information received by one healthcare entity to another entity. In addition, state law requires documentation of all disclosure of health information, whereas the HIPAA law requires documentation of some but not all disclosures.

The bill would allow re-disclosure of health information in a way that benefits electronic patient data exchange while retaining limitations on re-disclosure to protect confidentiality. It also eliminates the requirement to document all disclosure and aligns state law with HIPAA document disclosure requirements for child or elder abuse cases or public health reporting and disclosures to law enforcement and coroners.

Existing law also makes it hard to share health information with a patient’s family member, friend, or other person involved in the patient's care. Doing so requires the written consent of the patients when the patient may not be available or capable of providing written consent.

The new law would allow healthcare providers to disclose health information to a patient’s family, friend, or someone else the patient identifies. This would be the case as long as the patient provides informal permission. If the patient is not available or physically or cognitively unable to grant informal permission, the dissemination of information would be up to the caregiver’s professional judgment.

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Comments

Darrell Pruitt DDS responded 3 months ago: #1

Will Kevin Hayden's plan include dentists? A response would be appreciated. Darrell Pruitt, DDS

Deborah C Peel, MDm Patient Privacy Rights responded 3 months ago: #2

I am a practicing psychiatrist---today at least 30% of people with mental illnesses like Depression and Addiction refuse to have therapy, take medications, or get any mental health treatment unless they are guaranteed that their records will NEVER be shared.

So many have already been harmed because their records were shared without consent that they simply refuse any treatment unless it is private. They will not risk losing new jobs or having their reputations ruined again.

Rather than improving care, opening up records without consent will actually drive people away from care. Anyone who can pay privately will stay out of the system entirely. The poor and the most vulnerable people who cannot pay out-od-pocket will be victims of job, insurance, and credit discrimination because they will not be able to control who can snoop in, use, or sell the most sensitive information about them on Earth--their mental health and medical records.

Legislation to share sensitive mental health and medical records is an extremely unwise move, besides being unethical and illegal. Every state in the US STILL requires informed consent before electronic health information is exchanged and Hippocrates and the AMA Code of Ethics still forbid doctors from disclosing health information without consent.

Even though HIPAA eliminated our right of consent, it is only "floor" for privacy. It was never intended to be the "ceiling " for protecting the nation's privacy.

Wisconsin's stronger state and common law and medical ethics protecting privacy should not be destroyed by this bill.

Why destroy the trust of the people of WI by forcing them to have their information shared? The only resaon people trust doctors at all is because they still think that their doctors will always ASK first before sharing health information.

Aligning WI law with privacy-destructive federal policies is a HUGE mistake, because HIPAA was gutted and allows the unfettered data mining of all electronic health records without consent. That means 4 million corporations and government agencies can access your records even if you object!

At the federal level, Patient Privacy Rights leads the bipartisan Coalition for Patient Privacy to restore our control over personal health information. Over 50 national organizations signed letters to Congress demanding that electronic records systems restore consumer control over access to health records. The Christian Coalition, the ACLU, the Family Research Council, the American Chiropractic Association, the California Medical Association, and others representing over 7 million Americans pressed Congress to restore privacy rights, and stop exposing them to job discrimination and identity theft, and stop the rampant data mining and sale of prescription and health records. Data miners make billions per year stealing and selling Americans' personal health information without consent.

In 2006 and 2007 the Coalition sucessfully blocked proposed federal laws to build a national electronic records system without consumer control over health information.

Learn more about what you can do at: www.patientprivacyrights.org

Don't pass a law that eliminates your rights to control your medical records. It only takes a minute for those who want YOUR records to ask your permission, then the records can be shared instantly.

Respect for everyone's rights to privacy and autonomy is essential for trust and the wilingness to seek treatment.

Tell the WI legislature to require anyone who wants your health information to ASK YOU FIRST.

Once your privacy is violated and your information is dislosed to someone you do not want to see it, it can never be made private again.

Deborah Peel, MD
Founder and Chair, Patient Privacy Rights

Keller responded 3 months ago: #3

As a patient I want to decide who has access to my medical records not healthcare enterprises. This legislation makes patient privacy illegal. It is an immunity bill to allow providers to violate HIPAA and our constitutional privacy rights.

Patients should be careful not to sign any "privacy" agreements with their providers. These statements are tricking patients into signing away their privacy rights allowing corporations to share their medical data with any other corporations. Instead add a signing statement saying that you do not want your records released to any other providers anywhere without your permission. That way maybe you can sue when your rights are violated.

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